Another long day at the hospital today for Forester. When they drew his labs this morning his potassium is still very low so he has to get a bolus of that before leaving. It takes 2 hours to drip. Also, even though he just had a blood transfusion his level only went up from 7 to 8. Anything under 11 is low. So, I fully expect him to have to get another blood transfusion on Monday. His platelets are going down too so he may need those too by the time Monday gets here. His white count is still in the 2,000's which means it will probably tank over the weekend or by Monday. So, no going out and no visitors this weekend. At least there's football. :-)
Prayer request: Over the last week Forester has really struggled to take his pills. It's understandable. He has so many to take I wouldn't want to do it either! When we break up the large potassium & magnesium & septra into smaller pieces it ends up to be about 20 pills, 3 times a day. We were doing most of them in applesauce which has been fine until recently. It seems to be a mental struggle and he's so afraid of vomiting. Please pray for him! He has to take these pills. And starting Tuesday we add 4 accutane a day into his regimen. It has become quite stressful for me - pressure from the doctors to get them down him - trying to force him to take them...trying every different way possible...and without success. Poor guy. I wish I didn't have to make him do this. So, if you would, just pray about the pills. Also pray for my general attitude. I think I have become very weary in this marathon. I'm so tired of my baby being sick. More of the things that we have been used to as the new normal have started to upset me all over again. I need to regain my balance & keep focused on the finish line. *sigh*
A quick reminder about the motorcycle ride for Forester on Sunday - ANYONE is welcome with any kind of transportation. I wish Forester could be there & so does he!! A Bradburn will be out there to represent though!