Thursday, December 17, 2009

Yesterday's Labs & Hearing Test

Forester's labs were pretty good.  Everything is almost in the normal range except for his hemoglobin.  It continues to hover just under 9.  They usually transfuse if it goes under 9 but since it's not continuing to go down they want his body to recover on it's own. We don't have to go back for 2 weeks which is nice.

The results of Forester's hearing test showed that he has lost a little bit more in the higher tones.  I was told yesterday it's possible for him to lose even more as a residual effect from the chemo.  What can I say.  It's very disappointing and I'm sad.  I'm praying the hearing loss stops.  I really don't want him to have to have hearing aids on top of everything else he's endured.  I'm discouraged so I would really appreciate you praying in faith on my behalf.  My faith in this area feels a bit deflated.


Tuesday, December 15, 2009

Every one slept great last night! Thank you for your prayers!

Monday, December 14, 2009


I'm sorry it's been so long since my last post.  The wonderful Christmas craziness has begun and I haven't had a chance to update you. I never did finish a slideshow of Slade's first year.  After the New Year, I guess...

There isn't a whole lot to report.  Things have been going smoothly and Forester is doing well. We're still trying to adjust to this new schedule of normalcy!  After so much this year, I find it a little bit difficult to transition back into our old life.  Of course, it will never be our old life because that was a life without a child with cancer.  I was talking with another cancer-kid mom the other day and I said something like It's hard to imagine what life will be like when this is over.  And she posed the question: "Is cancer ever really over?"  I wasn't sure how to answer that.  Forester will have MRI scans for the rest of his life.  How do I not live in fear that his cancer will come back every time he gets a scan? Will it always define him?  Will it always define us?  I don't know. 

Right now, we're working on transitioning Forester back into school by sometime in January.  He has a lot of progress to make between now and then but I think we can do it.  The biggest challenges for him will be stamina and schedule.  He's used to taking a 2 hour nap everyday,  eating whatever he wants whenever he wants, and in general, a whole lot of flexibility.  We've started to cut out the naps and as of this evening Forester will finally be sleeping in his own room - not on the floor in our room like he has the last 10 months.  Kinda sounds like I'm transitioning an infant doesn't it?  All 3 kids in their beds by 8pm tonight sounds like a dream!  Pray that it goes well.  Forester wasn't too excited about leaving our bedside.  He's become quite attached to his little space in the corner.

Forester continues to go to the hospital clinic once a week for blood labs and this week he'll have another hearing test.  He'll have another MRI of his brain at the end of this month.  He still takes a handful of pills 3x times a day but hopefully as time goes on the amount of pills that he needs will decrease. Accutane will start back up after Christmas.

Hard to believe it's less than 2 weeks till Christmas!  Remember when you were a kid and it took forever for the month of December to go by?  We've really enjoyed getting ready.  We have a beautiful tree, lots of other decorations up and several Advent calendars.  The boys love counting down the days until Jesus' birthday and Santa's visit! Forester keeps reminding me that we really need to move all of the stuff that's in front of the fireplace because it will be in Santa's way.  They've even been a little nicer to one another as the Elf on the Shelf is watching... 

We have so much to be thankful for this Christmas.  I hope during all the busyness of this month, you have a chance to stop, look around and truly be thankful for all the blessings in your life. 

Love to all,