I'm asking for some prayers today. Forester has another MRI this coming Monday, June 4th. If this scan is clear then Forester will finally move to only having to have a scan every 6 months instead of scans every 3 months. In the past the thought of only getting to check in on his brain every 6 months brought me great anxiety but now it will be a huge and joyous milestone in his journey. If all is clear then he will also begin daily growth hormone shots which he desperately needs. His growth hormone level is extremely low and the side effects of this are more than just not growing. So, although these little shots will not be fun we are hoping they start very soon after his scan.
I am also asking that you would pray for me. I have been pretty forthcoming in past posts about how the loss of Forester's hearing really caught me off guard. He has adjusted to the hearing loss just fine and honestly we hardly notice a difference. This is a huge praise and thank you so much for your prayers for him. But, for me it seems that I haven't really recovered from that blow. The best way I know how to describe it is trust. Earning someone's trust if you don't already have it takes time. It's earned. I think with each MRI I gradually began to trust that Forester will be okay and is going to continue to be okay. Well, I fear I have lost that trust after the surprise hearing loss episode. I'm not sure how to get it back. I guess it only comes with time. So, I have more anxiety about this scan, about Forester's future and medical issues than I used to. I feel like I'm back to "waiting for the other shoe to drop". I guess time may be the only thing that gets me back to a healthy place but I know that our God is not bound by time and he can surely calm my fears and provide peace.
So as you pray for our sweet son and a clear brain scan will you also pray that God will heal my heart and provide his peace - especially on Monday.
1 month ago