So far, Forester has been doing really well. Still no vomiting & we finally won the war with the insurance company to be able to get more Zofran each month! Praise God for that!! He's actually felt so good that apparently he's been doing more than he should. I am still amazed at what is not communicated to us... His white cell count is as low as it can go which is completely expected a week or so past chemo. We were not told this. We are not doctors or nurses. We're learning as we go. This is the first time he's been neutropenic (huh?) and we had no idea what that meant and what the guidelines are. So...he's gone swimming the last couple of days, went to Toys R Us and a few other places without any immunity to infection! Great. I am thankful we have wonderful friends who are also doctors who clued me in, but it makes me see red to think that we were ignorantly jeopardizing Forester because no one told us what was going on...or assumed someone else had already told us. I want to scream "We've never done this before people! A little help here!" Pardon my vent but it's a little frustrating.
**Forester is currently at the hospital with Grandma to get a blood transfusion. We just got word that he has a fever of 101 and he is being admitted to the hospital. They will postpone the transfusion and give antibiotics right away and try to pinpoint what may be an infection. Re-read the beginning of this post and insert an angry growl here. UGH! Maybe this could have been avoided! Maybe not. Anyway, please pray for Forester. Pray for healing for his body. He also complained of mouth sores when he woke up this morning. OUCH! Pray for healing and comfort his mouth. We're trying to figure out what to do next..who goes to the hospital, what about the other kids, etc,...so pray for us too. Thanks so much, warriors. I (or April) will keep you posted.
9 months ago